New details on conditions

So I went to the Spina Bifida Clinic today and found out new information.  Luke is now 10 months and has been progressing impressively.  Today when he was seen by each doctor I was told that he would need to see a developmental pediatric specialist because he seems a little behind.  I agreed and set up the appointment.  When the orthopedic came in he was a little shocked to see how he had low muscle tone.  He decided to check the ct scans he had and discovered that Luke in addition to having spina bifida also had an absent corpus callosum and cerebellar hypoplasia.  I was never told about this and just thought it was just the spina bifida so you can imagine my shock, my anger, and my hurt.  The ortho said he didn't have any explainations to why I wasnt told about this sooner and couldn't understand how they could miss that.  But he explained to me as much as possible.  Right now we really dont know what the future holds but our faith stands strong.  The Occupational Therapist was surprised that he was breast feeding and the little hand motions has developed along with picking up his head. So yes I do have hope.  My faith in God will never fall because I know he has his will.  With prayer and faith my son will show us the unexpected!  Today I went into that office expecting them to tell me how great he's doing and what a way he has come to hearing that he will have a hard life.  Imagine my heart break.  I am just in shock, when I asked other parents alot of their responses were they were told about brain development in utero but when it came down to it they never actually met some one who has had those problems.  Well just our luck, Luke happens to be one of them.  I will keep you updated and we go just finding out this information.  And to the new parents expecting a child in this condition I am open to any question but please remember I am just learning as well but I will give you advice if I have experienced it.