Luke has been doing great. So far we had a follow up with the urologist and so far he does not have to be cathed but it is still on an only time will tell basis. Once he is old enough to get potty trained we will know for sure. Currently it is all up to me and I chose not to because I want to leave it in Gods hands. We went and saw a kidney specialist and she said he had a little bit of fluid backed up in the kidneys but nothing to be concerned about, in fact she said "This little boy has perfect kidneys!" Now we don't have to see her for a year. His shunt has but functioning great! No malfunctions are back ups. He has been having CT's every 3 months and the doctor felt confident to move it to 6 months. The Optomitrist said he has all his nerves intact correctly and his vision seems great right now but will probably need glasses later on in the future. He sent me to a different doctor who is going to talk to me about surgery on his left eye to straighten it out but he wanted to give it some time to see if it would straighten out on its own. The reason his eyes kind of looks inward and he has to really try to focus but this is due to the hydrocephelus when he was born. His Ortho seems to think he will be using a wheel chair but I really doubt that. He does have leg movement but everytime we go and see him Luke makes me look like a liar. lol. Its okay I see them get stronger every day. He doesnt put much pressure on them standing up but there are times when he does try. I started noticing when I pick him up like hes flying while playing with him, he tends to move them dramatically and it looks like a miracle, so as for right now I am working with him on that so it can build up his muscles. The Occupational Therapist says he is doing great. He can pick up a spoon and put it in his mouth. He always started transfering toys one hand to another! Which is great! He his alway laughing and filled with joys. Loves all the attention from his family and our friends. I cant wait till he gets big and more active so he can start doing more stuff. I am so excited for him and truly blessed. Please keep him in prayer!
